"When the Japanese mend broken objects they aggrandize the damage by filling the cracks with gold. They believe that when something's suffered damage and has a history it becomes more beautiful." ~Barbara Bloom
Last year I was in a neuro psych's office working on some cognitive shite and she said to me, "you seem good today." And I replied, "I'm allowed to have a good day." And she smiled and nodded.
It is important for me to remember that I'M ALLOWED TO HAVE A GOOD DAY. Every day doesn't have to be shitty. Every thing in my life doesn't have to be awful. I'm allowed to have fun. I'm allowed to celebrate. I'm allowed to laugh and tell jokes and volunteer my time. I'm allowed to suck up as much pain as I need to to have a NORMAL LIFE FOR ME. I'm allowed to have a good day.
Meanwhile - I'm writing this because I have a good endo now. I like her a lot. I like her entire staff. This is cool because I have many specialists I adore and I was REALLY hating my former endo. He just wasn't figuring shit out AND I felt like I was doing all the work AND he wasn't getting any clear diagnoses and I was floundering with no clear treatment plan.
So - good - I have a plan of action and I have a set treatment plan. And I can go back on some of my immunosuppressant drugs, which will help my health and pain flares. AND some of my moods are surely related to the hormonal issues which will soon be regulated. In six months, we'll recheck with another MRI and see if there are any changes. If not, surgery is always an option. So - I feel good. I feel safe. I feel like things are underway.
Life feels handled again. I'm generally in control, of at least knowing what's going on. I HATED not being aware. I hated being treated like it was my fault. It puts you back in the child's seat. I hated my mood swings because I was getting very low. Even knowing there was an organic reason didn't stop it. Rational doesn't make it go away.
Meanwhile - I'm doing my best. I really am. I'm not as productive as I'd like to be but I am hopeful that positive changes begin. And I'm trying to be gentle with myself. Some people are not getting cards this year- or they are getting them late. Some people are having to deal with my sad moods BECAUSE I FEEL SAD.
And - I also KNOW that autoimmunities are odd. Many of these bizarre illnesses have gotten worse because they have been complicated and gone without treatment. Once I begin to deal with the complexities - like the out of wack thyroid and the bullshit tumor and the little things that are cropping up, the other things like the immune system can simmer back down, be calm, chillllllll.
I was able to successfully get through grad programs, exams, jobs, marriages, businesses, comedy, a busy life. I can finish this up. I can finish this writing. I can heal and be ok. I'm sure of it. I keep visualizing perhaps a much calmer life for myself- but a life. Teaching, writing, living in a cute snug home. I must keep this hope.
Life isn't all bleakness. Even in the darkness there are messages- some are actually NOT depressing. When you are very quiet and still - sometimes you are quite comforted by the realization of quiet safety for a change. I rarely let myself be overcome by despair. Having a hormonal reason to give into worst case scenarios has let me realize my own worst fears. I'm done with that. It is time to pick back up.
Life during the holidays is sad for me. I miss many people and have many poignant memories. I will hold them and move on. It is all I can do. Life may not play out the way I had hoped but how often does it? I often talk to younger people who are arrogant and have very little respect for life. One even mocked me when I said that I would gladly date someone who had been heartbroken as long as they had taken the time to heal bc they would have greater respect for life. I thought- how little you know- how little you cherish life. Immediately they feel off the radar for someone I would ever date. A person who has never known loss or pain can never truly respect life. They called it, "baggage." I find it blissfully immature and wish them well. No matter what your age - you should be able to heal from it. We all carry that and heal from it.
Wanting someone with "no baggage" is a baggage of it's own. It is called, "perfectionism." And it is a way of finding so many flaws with others that we reject everyone instead of finding beauty with people. It is OK to have specifications for who we wish to be with romantically. But perfectionism is in itself a way of rejecting life.
They also told me that being ill ads an additional component to romance- like an additional flaw. I mean - DUH. I realize that. Though it is invisible and I could lie about it through omission once I'm feeling better. But I would not because that would not be honest. People bring all sorts of sundry bits of themselves into life. The partner who accepts someone accepts the harder bits too. But yes- illness is a biggie.
I used to think I was invincible when I was younger and men were attracted to my confidence. Which is hilarious because much of it was false - a type of bravado. Was that a lie? Or was it a part of me that I am more honest about now. I'm more honest about being insecure. I'm needier now. I'm more loving. And I'm braver. I'm a WHOLE PERSON. Does it make me more or less lovable and attractive? Who knows?
"When the Japanese mend broken objects they aggrandize the damage by filling the cracks with gold. They believe that when something's suffered damage and has a history it becomes more beautiful." ~Barbara Bloom
